The Stories from Experience resource maintained by The Butterfly Foundation, was developed by a project of the Australian Department of Health, called the National Eating Disorders Collaboration (NEDC). Here and there after any reference to NEDC, implies that responsibility lies with The Butterfly Foundation.
1. What type of data do we collect and hold?
From the Stories from Experience resource, Butterfly Foundation will collect:
- Personal Information: Personal Information about you that was entered at the sign up stage. The types of Personal Information that we may collect includes, but may not be limited to, your username, email address, date of birth, state, module interaction, activity interaction and the internet protocol (IP) address of the computer you are using. Butterfly Foundation will not have view of personal timelines, notebooks or dashboards.
- Non-Personal Information: This information includes the pages you have visited and various log information including information about your browser such as the type and language, the date and time of your request and cookies to identify your browser. Non-Personal Information is not capable of identifying the individual user.
2. How do we use the information we collect?
(a) Personal Information: The Personal Information you provide us may be used to identify trends in how individuals use the Stories from Experience resource. In accordance with article 10 of the Terms and Conditions, it should be noted that the Stories from Experience page will not be monitored by Butterfly Foundation and no responsibility can be taken for the use of personal information by third parties.
(c) Non-Personal Information: Non-Personal Information may be used and combined with Personal Information to provide better services to users of the Stories from Experience resource and to administer and improve the resource for your use.
3. Who we disclose our information to
Personal Information as described above is disclosed to Butterfly Foundation Staff for data collection on usage patterns and reporting purposes. Butterfly Foundation staff will have access to personal Information necessary to perform the clarified functions but may not use this information for other purposes. When disclosing this information we may take reasonable steps to ensure that the recipient is bound by confidentiality and privacy obligations in accordance with the Act and this policy.
There are certain circumstances where we are entitled to disclose Personal Information (including Sensitive Information) without your consent, including if we believe there is a serious and imminent threat to the life, health or safety of yourself or the public, for legally permitted law enforcement activities, or where otherwise required or authorised by or under law.
4. How can you access the personal information that we hold about you?
We will take all reasonable steps to keep your Personal Information (including Sensitive Information) up-to-date and accurate. You have the right to request access to or correction of any information which relates to you and we will take the appropriate steps to provide you with access to correct information we hold about you.
If you would like to access a copy of the Personal Information (including Sensitive Information) we hold about you, or believe that the information we have is not up-to-date, complete or accurate, please contact us as specified below.
When you contact us, please include your name/username and contact details and clearly describe your request or complaint. We will respond within a reasonable period. If we decline your request to access that information or to correct it we will provide you with written notice setting out the reasons why your request has been refused and the mechanisms available to you to complain about the refusal.
If you would like your account on the Stories from Experience resource removed, you will need to send an email to the managing project, the NEDC, on from the email address registered to that account and state your username and name.
5. Complaints process
Butterfly Foundation expects its procedures will deal fairly and promptly with your complaint. However, if you are not satisfied with our response or would like to make a formal complaint you may at any time refer your complaint to the Office of the Australian Information Commissioner (which is the regulator responsible for privacy in Australia).
Office of the Australian Information Commissioner (OAIC)
Complaints must be made in writing.
Phone: 1300 363 992
Director of Compliance
Office of the Australian Information Commissioner
GPO Box 5218
Sydney NSW 2001
6. How we protect your information
Butterfly Foundation has implemented a range of procedures to protect your Personal Information from modification, misuse, disclosure, loss and unauthorised access. This is done through our technology infrastructure, our internal risk management framework and security policies and procedures, and for all communications through our website via a secure server.
7. Duty of Care
Stories from Experience is not monitored. It has been designed to encourage users and those given access to a timeline to seek help where appropriate. The functions include:
Helplines and emergency contacts visible on all pages
Automated emails including helplines and support service information
You can share your timeline with someone you choose. This person is not liable or responsible for taking action should this content concern them.
9. How to contact us
NEDC c/o The Butterfly Foundation
103 Alexander Street
Crows Nest NSW 2065
Phone: (02) 9412 4499